check this out, its brill.
http://www.slide.com/r/UDF93qmRzj-QCsxfVA80a673FZcniDhB
Wednesday, November 28, 2007
Thursday, October 25, 2007
Sunday, September 16, 2007
Hospital
Scott is going into hospital tomorrow (Nuffield Oxford) for an infusion. Will probably be in most of week. It is basically to try to help him at the moment as he comes down off his medications. He is bedridden right now and has been for some weeks and in the most dreadful pain. Morphine helps but makes him really sleepy. Hence this piccie, which I know he will hate as he is also has cushings syndrome which gives the appearance of a ballooon shape face and puts weight around the middle, due to the very high doses of steroids he is taking. He is normally very slim, but this is an honest diary, so we are going to record the good and the bad. Having said that, I still think he looks gorgeous, even when he is ill.
Scott is going into hospital tomorrow (Nuffield Oxford) for an infusion. Will probably be in most of week. It is basically to try to help him at the moment as he comes down off his medications. He is bedridden right now and has been for some weeks and in the most dreadful pain. Morphine helps but makes him really sleepy. Hence this piccie, which I know he will hate as he is also has cushings syndrome which gives the appearance of a ballooon shape face and puts weight around the middle, due to the very high doses of steroids he is taking. He is normally very slim, but this is an honest diary, so we are going to record the good and the bad. Having said that, I still think he looks gorgeous, even when he is ill.
Thursday, September 13, 2007
The Journey.
We are about to set out on a journey. Not a holiday or the type of journey you would particularly want to go on, but a journey all the same.
Scott's Still's Disease has been unremitting for the past couple of years - nothing that the Doctors can do to ease his dreadful pain causing more and more mobility to the point where he is virtually bedbound. After much deliberation by his consultants in Oxford, they have referred him to Southampton General for tests which hopefully all being well will result in him having a Stem Cell Transplant.
It is a very risky procedure and not to be taken lightly. However, Scott's quality of life at the present time actually gives him little choice but to give it a go. He is going into the Nuffield at Oxford next week for a week of infusions.
This will be followed by poor little blighter requiring his sperm frozen as he will become infertile with the chemotherapy.
At the beginning of October, he will undergo a lot of tests down in Southampton and depending on the results of those, the beginning of November will be his first 'priming' dose of chemo, followed by daily injections to promote the growth of stem cells (he is having an autologous stem cell transplant, which means you use your own stem cells - we all have them) There is a lot of controversary surrounding stem cell transplants as most people think you have to use the stem cells of foetus, but that is not true as you can use your own.
When they are certain that Scott is producing a good amount of Stem Cells they will be harvested ready for Transplant. The Transplant is due to take place at the beginning of January, where he will be kept in isolation and giving chemotherapy every day until his immune system is completely knocked out. They then transplant the harvested Stem Cells back into his body in the hope that they will develop a completely new immune system.
I will be using my blog as a 'diary' whilst our journey unfolds.
We are about to set out on a journey. Not a holiday or the type of journey you would particularly want to go on, but a journey all the same.
Scott's Still's Disease has been unremitting for the past couple of years - nothing that the Doctors can do to ease his dreadful pain causing more and more mobility to the point where he is virtually bedbound. After much deliberation by his consultants in Oxford, they have referred him to Southampton General for tests which hopefully all being well will result in him having a Stem Cell Transplant.
It is a very risky procedure and not to be taken lightly. However, Scott's quality of life at the present time actually gives him little choice but to give it a go. He is going into the Nuffield at Oxford next week for a week of infusions.
This will be followed by poor little blighter requiring his sperm frozen as he will become infertile with the chemotherapy.
At the beginning of October, he will undergo a lot of tests down in Southampton and depending on the results of those, the beginning of November will be his first 'priming' dose of chemo, followed by daily injections to promote the growth of stem cells (he is having an autologous stem cell transplant, which means you use your own stem cells - we all have them) There is a lot of controversary surrounding stem cell transplants as most people think you have to use the stem cells of foetus, but that is not true as you can use your own.
When they are certain that Scott is producing a good amount of Stem Cells they will be harvested ready for Transplant. The Transplant is due to take place at the beginning of January, where he will be kept in isolation and giving chemotherapy every day until his immune system is completely knocked out. They then transplant the harvested Stem Cells back into his body in the hope that they will develop a completely new immune system.
I will be using my blog as a 'diary' whilst our journey unfolds.
Saturday, August 18, 2007
Jeff Buckley- Hallelujah- Music Video
This is gorgeous. Long intro but worth listening to. Beautiful song.
Tuesday, August 14, 2007
Im in London. I still find it fascinating that you can access all your info from wherever your are. The internet is indeed a wonderful tool. Mike and I have come down to London to sort out his visa for his Philippine trip. He will be staying with his dad over in the Philippines for quite a while to aid his recovery and also to get to see his dad, who he hasn't seen for over 15 years now. I'm pleasantly surprised at the price of hotels in London. We are staying just over from Kensington Park. A nice hotel, lovely swimming pool, etc. and only 59 pounds per night per room, including brekkie. We arrived on Sunday and booked into a Thistle Hotel which was about 110 pounds per night but they could only fit us in for the one night. I'm quite pleased about this, as we went for a walkabout and found loads of hotels much cheaper, but equally as good. I'm also gobsmacked that they still having smoking rooms. All the hotels have a choice of smoking or non smoking rooms - apparently as they are privately owned property, the rooms can still be smokers rooms - not in the bar or restaurant. I don't smoke personally, but my hubby does and finds it against his civil liberties not to be allowed to smoke. He's happy to choke me to death though! I'm only joking - it has never really been an issue for me. I've never been a smoker, but other people smoking has never bothered me. Everyone to their own. I am teaching hubby how to use email so he can email me from the Philippines instead of phoning. He is also going to be reading my blog so I better be nice. lol.
Hope you are reading this Nicola, cos I'm only updating it cos you said you read my blog!! lol.
Hope you are reading this Nicola, cos I'm only updating it cos you said you read my blog!! lol.
Saturday, June 30, 2007
Cardmaking (wow, never thought I would do it)
Well, this has been another difficult year so far. I haven't got much scrapping done. However, I feel a bit more positive and will hopefully do a little bit more in the future. I am also starting cardmaking. There are a few reasons for this decision. I have LOADS of stash that I need to use up but it is a bit 'out of date' and I have just gone off it. However, it cost quite a lot so need to use it up. I am going to 'cut it up' for cardmaking. Also I can hopefully satisfy my need for 'Pink and Girly', as most of my scrapbooking isn't girly (having two boys). I also want to sell any cards I make for Charity. Therefore, this cardmaking lark should have a number of uses. It will use up my old stash, allow me to create girly stuff and make a bit of money for Charity. I am also 'stamping' now. Something I haven't really been in to before, but will be able to incorporate this into my Scrapbooking and Altered Art. So, a good idea altogether, I feel. I will post some of my cards, when they are made.
Well, this has been another difficult year so far. I haven't got much scrapping done. However, I feel a bit more positive and will hopefully do a little bit more in the future. I am also starting cardmaking. There are a few reasons for this decision. I have LOADS of stash that I need to use up but it is a bit 'out of date' and I have just gone off it. However, it cost quite a lot so need to use it up. I am going to 'cut it up' for cardmaking. Also I can hopefully satisfy my need for 'Pink and Girly', as most of my scrapbooking isn't girly (having two boys). I also want to sell any cards I make for Charity. Therefore, this cardmaking lark should have a number of uses. It will use up my old stash, allow me to create girly stuff and make a bit of money for Charity. I am also 'stamping' now. Something I haven't really been in to before, but will be able to incorporate this into my Scrapbooking and Altered Art. So, a good idea altogether, I feel. I will post some of my cards, when they are made.
Sunday, May 13, 2007
Size Really Does Matter
Bought a fabby new album from Scrapajack yesterday. It is 8.5 x 11, and it is going to make a huge difference to my scrapping mojo. I did a page today and it was sooooo much easier than scrapping 12 x 12. Plus if you want to print something on the page it will fit through the printer. Not that I did. But I might want to. really enjoyed it. I am making an album for my youngest son's birthday (which is next month, so it could end up as a Chrimble pressie yet.lol).
I've had two days of scrapping and have loved it. Scrapajacks crop yesterday and Swindon Crop today. Made a fabby wabby mini book yesterday at Chris's class at Scrapajack, and started to cover it today at Swindon crop, plus did a page for my new album.
This is it.
Bought a fabby new album from Scrapajack yesterday. It is 8.5 x 11, and it is going to make a huge difference to my scrapping mojo. I did a page today and it was sooooo much easier than scrapping 12 x 12. Plus if you want to print something on the page it will fit through the printer. Not that I did. But I might want to. really enjoyed it. I am making an album for my youngest son's birthday (which is next month, so it could end up as a Chrimble pressie yet.lol).
I've had two days of scrapping and have loved it. Scrapajacks crop yesterday and Swindon Crop today. Made a fabby wabby mini book yesterday at Chris's class at Scrapajack, and started to cover it today at Swindon crop, plus did a page for my new album.
This is it.
Saturday, April 14, 2007
My hubby Mike, had a stroke almost 3 weeks ago. It has been a very weird time for us all, as we come to terms with the fact he will be fairly disabled for at least the next twelve months. There have been complications in as much as there is some sort of 'mass' on his brain. He has had some seizures. He is 50 this year and is relatively young to have had a stroke. He has been extremely stressed the past few weeks due to certain circumstances which have no doubt contributed to this happening. I have found it particularly hard trying to keep the business going and keeping the family bolstered throughout this time. We are getting there tho.
On a lighter note, I have decided to do some cardmaking. I love Scrapbooking and I love altered art, but my mojo has virtually disappeared of late. Thought I might do some smaller projects. I will do some ATC's and Ive got a couple of other ideas - but thought I would also do some cardmaking - mainly fairies, angels and cute baby, teddy stuff. Having two boys mean most of my scrapbooking isn't usually based on the pretty stuff, so gonna use another outlet to keep that side of me happy.
On a lighter note, I have decided to do some cardmaking. I love Scrapbooking and I love altered art, but my mojo has virtually disappeared of late. Thought I might do some smaller projects. I will do some ATC's and Ive got a couple of other ideas - but thought I would also do some cardmaking - mainly fairies, angels and cute baby, teddy stuff. Having two boys mean most of my scrapbooking isn't usually based on the pretty stuff, so gonna use another outlet to keep that side of me happy.
Tuesday, April 03, 2007
Long Time - No Post
It has been a long time since I last posted - so my New Year's Resolution, yet again, down the pan.
However, once more into the breach. This year appears to be going the same as most years. More downs than ups. Being a very positive optimistic person normally - I feel as if the 'Gods' are really trying my Faith. Let's see how much we can throw at her, then we will see how positive she is. I'm sure we all feel like this at times. We plough on, regardless, keeping our chin up - not letting life get us down. So, when do we give in - enough is enough - ok, I give up.
That is how I feel right now, Today. Probably tomorrow, I will be ok again. But tonight - I've had enough. Anybody up there listening!!!!! You bloody win. I've had enough.
It has been a long time since I last posted - so my New Year's Resolution, yet again, down the pan.
However, once more into the breach. This year appears to be going the same as most years. More downs than ups. Being a very positive optimistic person normally - I feel as if the 'Gods' are really trying my Faith. Let's see how much we can throw at her, then we will see how positive she is. I'm sure we all feel like this at times. We plough on, regardless, keeping our chin up - not letting life get us down. So, when do we give in - enough is enough - ok, I give up.
That is how I feel right now, Today. Probably tomorrow, I will be ok again. But tonight - I've had enough. Anybody up there listening!!!!! You bloody win. I've had enough.
Saturday, January 27, 2007
This is a picture I really like of Mary (my mother in law who passed 48 hours ago). She absolutely loved babies, and this is our Matt, bless. 18 years ago. Mike and I were going into London for the weekend and dropped Matt off with Mary and John (Mikes stepdad). Up to about the age of 3, she would willingly have them, so Mike and I used to make the most of it and go to London quite a lot. However, once they got passed about 3 years old, she never really bothered with them again - which I used to find really odd, but then, heyho we are all different, thank goodness.
Thursday, January 25, 2007
Goodbye Mary
My mother-in-law passed over tonight. She was a good woman who has had a very interesting life. Her passing was very peaceful - direct opposite to the torment of the past two years. Poor woman went through hell - she had Lewy Bodies Dementia. When my hubby and I visited her yesterday, she had a very very rare moment of lucidity (for the past six months she hasn't known who we are, or who she is) - she looked at us and said 'I can't do this anymore, I've just had enough, there's only so much you can take and I can't take it anymore'. I knew then her spirit was leaving.
God Bless You Mary - Love and Light. xxxx
My mother-in-law passed over tonight. She was a good woman who has had a very interesting life. Her passing was very peaceful - direct opposite to the torment of the past two years. Poor woman went through hell - she had Lewy Bodies Dementia. When my hubby and I visited her yesterday, she had a very very rare moment of lucidity (for the past six months she hasn't known who we are, or who she is) - she looked at us and said 'I can't do this anymore, I've just had enough, there's only so much you can take and I can't take it anymore'. I knew then her spirit was leaving.
God Bless You Mary - Love and Light. xxxx
Tuesday, January 23, 2007
Mixed Feelings
Received a phone call yesterday evening from Winchester Hospital. Mike's (hubby) mum is critically ill. Drove down to Winchester today to see what is going on, as Mike's sister can sometimes be a little dramatic (bordering on hysteria, normally). Anyway, besides the Alzheimer's that she has been suffering from, she also suffers with emphesyma. She now has pnueomonia. She hasn't eaten for three days, and the doctors have said they will not resuscitate if she needs it. Due to her alzheimers, she has a fear of anything over her face, so will not allow them to put oxygen mask on her, so they have now decided not to give her oxygen either, as it distresses her too much. Her skin has started to break open and bleed (Im assuming due to lack of fluids), she is taking very very short sharp breaths, her fingertips and lips are blue, and when she coughs she sounds like she is drowning. She is totally disorientated and is asking for her mom (who has been dead 30 years). Good God, we would not allow an animal to go through this. I only pray she will go in her sleep, for her own sake.
I cannot say we have always seen eye to eye. However, I have always respected her as a very intelligent, well travelled, well mannered lady. One of the 'old school' with a military family. Big on etiquette. A little bit prim maybe (compared to me,lol). This is just awful to see her like this, and I know she would be totally horrified herself if she was in her 'right' mind.
Time to make a Living Will, methinks. Bring on Euthanasia for me please.
Left is a picture of Mary (Mike's mum), she is the one in the centre of the piccie. This was taken when she lived in Singapore, 1958. The little blonde fellah, in the right hand corner, is my hubby, no less. lol. (does he look like a little girl, or what!!).pmsl.
Received a phone call yesterday evening from Winchester Hospital. Mike's (hubby) mum is critically ill. Drove down to Winchester today to see what is going on, as Mike's sister can sometimes be a little dramatic (bordering on hysteria, normally). Anyway, besides the Alzheimer's that she has been suffering from, she also suffers with emphesyma. She now has pnueomonia. She hasn't eaten for three days, and the doctors have said they will not resuscitate if she needs it. Due to her alzheimers, she has a fear of anything over her face, so will not allow them to put oxygen mask on her, so they have now decided not to give her oxygen either, as it distresses her too much. Her skin has started to break open and bleed (Im assuming due to lack of fluids), she is taking very very short sharp breaths, her fingertips and lips are blue, and when she coughs she sounds like she is drowning. She is totally disorientated and is asking for her mom (who has been dead 30 years). Good God, we would not allow an animal to go through this. I only pray she will go in her sleep, for her own sake.
I cannot say we have always seen eye to eye. However, I have always respected her as a very intelligent, well travelled, well mannered lady. One of the 'old school' with a military family. Big on etiquette. A little bit prim maybe (compared to me,lol). This is just awful to see her like this, and I know she would be totally horrified herself if she was in her 'right' mind.
Time to make a Living Will, methinks. Bring on Euthanasia for me please.
Left is a picture of Mary (Mike's mum), she is the one in the centre of the piccie. This was taken when she lived in Singapore, 1958. The little blonde fellah, in the right hand corner, is my hubby, no less. lol. (does he look like a little girl, or what!!).pmsl.
Wednesday, January 03, 2007
Finished At Last
Learned how to make this gorgeous paper bag book in Fiona's Class at ScrappersUnlimited Retreat in Gloucester. I originally wanted to make it for Janine's 21st Birthday in November, but didn't get it finished in time. In fact, didn't finish it in time for Christmas either. However, she has had it today as a New Year gift and she absolutely loved it.
I really enjoyed making it too, so hope to make many more in the future. There's loads of tags and secret places for piccies and inspirational quotes. I made mine on a 'love' theme, with lots of piccies of Scott and Janine. Very pleased with the finished product.
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